© 2017 Hereditary Colon Cancer Foundation

 

www.HereditaryColonCancerFoundation.org and www.HCCTakesGuts.org are informational and support websites for those affected by hereditary colon cancer syndromes. The website does not provide medical advice, recommend or endorse health care products or services, or control the information found on external websites.

 

Hereditary Colon Cancer Foundation and the Familial Adenomatous Polyposis Foundation are registered charitable organizations in Illinois and Utah, and tax-exempt under Internal Revenue Code Section 501(c)(3). Mailing address: 3519 NE 15th Avenue, Unit 518, Portland, OR 97212  |  info@HCCTakesGuts.org

​

Hereditary Colon Cancer Takes Guts

  • c-tbird
  • c-linkedin

Attenuated FAP, Cowden Syndrome, Familial Adenomatous Polyposis, Gardner Syndrome, 

Hereditary Mixed Polyposis, Juvenile Polyposis Syndrome, Lynch Syndrome, Muir-Torre Syndrome, MYH-Associated Polyposis, Peutz-Jeghers Syndrome, Turcot Syndrome

  • Home

  • Inspiration

  • Resources & Support

  • Support the Cause

  • About Us

  • More

    Watch NOW:

    "How to Defy a Hereditary Predisposition 

    and Prevent Colon Cancer"

    2014 Polyposis Webinars

    As part the Hereditary Colon Cancer Foundation's commitment to increase the quality of care for our patient population, we are hosting five webinars that will educate medical professionals about key issues and best practices in the care of patients with hereditary colon cancer syndromes.

     

    August, 2014: Current Screening Protocols for Hereditary Colon Cancer Syndromes

     

    September, 2014: Prevailing Techniques for Successful Colectomies

     

    October, 2014: Extracolonic Manifestations in Polyposis Conditions

     

    November, 2014: Hereditary Colorectal Cancer Research Highlights

     

    December, 2014: Best Practices in Genetic Screening for Hereditary Colon Cancer Syndromes

     

    Click here for details.

    Presented by Drs. Randall Burt and Jewel Samadder of the Huntsman Cancer Institute's High Risk Colon Cancer Clinic, this webinar covers key topics every gastroenterologist and GI resident should be aware of when diagnosing or providing care to patients symptomatic of APC-related diseases (Familial Adenomatous Polyposis and Attenuated-FAP) or MUYTH-Associated Polyposis (MAP). Key topics include:

     

    1. Risk assessment, including screening and testing options, for early diagnosis

    2. The role of genetic counseling

    3. Prophylactic treatment and surgical options

    4. Options for reducing and/or preventing polyp growth

    5. When, where, and how to refer a patient to an expert facility and what to expect in coordinating the follow up care you provide

     

    This webinar improves your ability to provide prophylactic treatment to your patients and successfully decrease the instances of cancer. Read more about Drs. Randall Burt and Jewel Samadder below.

     

     

     

    About Randall W. Burt, MD

    Randall Burt, MD, is senior director of Prevention and Outreach at Huntsman Cancer Institute. He is also a professor in the Department of Medicine, at the University of Utah School of Medicine. Dr. Burt completed his medical training at the University of Utah and at Washington University in St. Louis.  Early in his career he worked withEldon Gardner, PhD, who described the Gardner syndrome variant of familial adenomatous polyposis (FAP), in determining the precise clinical description of this disease.  He later worked with Ray White, PhD, on the genetics of FAP and was part of the team that discovered the APC gene, which is the gene mutated in FAP.  He was then involved with others in the work that led to the clinical availability of genetic testing for FAP.  Dr. Burt established a high risk colon cancer registry to assemble, treat and study persons and families with inherited colon cancer syndromes and familial risk of colon cancer.  The registry now contains over 600 individuals with FAP.  Throughout the investigations and work, Dr. Burt has clinically cared for patients and families with FAP and other inherited colon cancer syndromes.  This experience has contributed substantially to developing the appropriate genetic testing and clinical care guidelines for those with this condition. 

    About N. Jewel Samadder, MD, MSc

    N. Jewel Samadder, MD, MSc, is an assistant professor in the Department of Medicine at the University of Utah School of Medicine. He is also a Huntsman Cancer Institute (HCI) investigator and a member of the Cancer Control and Population Sciences Program. Samadder received his medical degree from the University of Toronto, completed a fellowship in gastroenterology and a master’s degree in healthcare research at the University of Michigan, Ann Arbor, an advanced endoscopy fellowship at the Mayo Clinic, Rochester, MN and obtained specialized training in cancer genetics at the University of Michigan Comprehensive Cancer Center. He sees patients in HCI’s High Risk Colon Cancer Clinic. His clinical interests include gastrointestinal cancer syndromes and endoscopic oncology. He specializes in endoscopic procedures including ultrasound, small bowel balloon enteroscopy and endoscopic retrograde cholangiopancreatography. His research focuses on the early detection and prevention of colorectal cancer, including studying the risk of colorectal cancer associated with genetic predisposition, lifestyle factors, chronic diseases, and chemoprevention.