The Patient Experience - A Q/A Based 

Discussion with Patient Advocates

Presented by:

Robin Beth Dubin, AliveAndKickn,

Dakota Fisher-Vance, FAPulous TV and Young People Cancer Connection,  

and Lisa Kulhanek, JPS Patient Speaker, The Toro Company

Live: October 6, 2016 @ 1pm ET
On-Demand: October 10, 2016

The “The Patient Experience - A Q/A-Based Discussion with Patient Advocates Facing Hereditary Colon Cancer ” webinar will present patient advocates responding to a pre-set Q&A including questions such as: 


  • What information was...

        - helpful to receive at the time of your diagnosis?

        - would you have liked to receive at a later date?

  • What were the short/long term psychosocial effects of diagnosis?

  • How did you share your diagnosis with...

        - your family members?

        - with friends and significant others?

  • What resources...

        - do you use to keep on track with your screening/surveillance?

        - have you found helpful to help with the psychosocial effects of having a rare polyposis


  • What helpful tips could medical providers pass along to other patients regarding navigation of the health system? 


Learning Outcomes


At the conclusion of this webinar, medical professionals will be able to:


  • Incorporate patient perspectives/insights into their clinical practice. 

  • Communicate tips/tools to their patients to help navigating the landscape of their rare polyposis condition. 

  • Identify common psychosocial effects of being diagnosed with a rare polyposis condition. 


Registration Information


8 Part Webinar Series: $65* by February 20th

8 Part Webinar Series: $75* after February 20th


Educational Credits



According to the criteria of the American Board of Certification for Gastroenterology Nurses (ABCGN), 8 hour(s) earned in this activity are considered GI Specific for the purpose of recertification by contact hours through the ABCGN.



This conference has been approved by the Canadian Association of Genetic Counsellors (CAGC) for 6 CECs.



The National Society of Genetic Counselors (NSGC) has authorized the Hereditary Colon Cancer Foundation to offer up to 0.80 CEUs or 8.00 Category 1 contact hours for the event: Recognizing and Treating Polyposis Conditions. The American Board of Genetic Counseling (ABGC) will accept CEUs earned at this program for the purposes of genetic counselor certification and recertification. 


*At the time of registration, a one time $25 fee will be added for individuals desiring CEUs through the NSGC. 


Sessions may be attended LIVE or viewed On-Demand.


Refund Policy


Registration fees cover the cost of CEUs, and production and promotion of the webinar series. Proceeds benefit the Hereditary Colon Cancer Foundation. If you would like to receive a refund, please email 24 hours prior to the first webinar's start time. Refunds will exclude a 10% processing fee.