Below you will find support organizations, patient forums, and Facebook pages created by individuals who have been affected by hereditary colon cancer syndromes. We encourage you to read and respond to them. Share your experience. Ask questions. Inspire others...this is your community.

Peer Support... get by with a little help from your Friends!

This open Facebook group for those with barnett continent intestinal reservoir boasts over 100 members.

A U.K. bowel cancer forum for patients and family members. As of March, this forum boasts almost 20,000 posts in over 1300 topics from over 1500 members. 

A support forum, for those affected by Bannayan-Riley-Ruvalcab Syndrome. This closed Facebook group boasts over 100 members.

Think of us as an online space where you can connect, share news, and receive support. It’s your very own health social network, coming together on your personalized website. 

A non-profit organization supporting those affected by HNPCC/Lynch Syndrome. As of March, this open Facebook group boasts over 425 members.

COLONTOWN is an online community of more than 50 “secret” groups on Facebook for colorectal patients, survivors, and caregivers.

A support forum, for those affected by Cowden Syndrome. This open Facebook group boasts nearly 100 members.

An open discussion group with over 800 members.

Focal community area on Familial Adenomatous Polyposis (FAP) for families, friends or anyone else that wants to add their support This open group boasts over 200 likes.

This forum boasts 480 posts in 200 topics by 113 members.

Show awareness for FAP and Hepatoblastoma. Two rare diseases which are hereditary. As of March, this open group has almost 50 likes.

A support forum, for those affected by Gardner Syndrome. Tthis open Facebook group boasts over 50 members.

The Fight Colorectal Cancer Support Community connects patients, family members and caregivers to empower them to become advocates for themselves and the cause.

Find support, explore ways of coping with the stress of a cancer diagnosis and treatment, and learn how to be active in enhancing your health and well-being.

A support forum, for those affected by Gardner Syndrome. As of March, this open Facebook group boasts over 100 members.

Imerman Angels carefully matches and individually pairs a person touched by cancer (a cancer fighter or survivor) with someone who has fought and survived the same type of cancer (a Mentor Angel).

A non-profit support group for those affected by HNPCC/Lynch Syndrome. As of March, this open Facebook group boasts over 150 members.

This closed Facebook group boasts over 800 members.

Join others who have written 4,753,658 posts about the health issues that are important to them. Sign up for groups about health topics important to you. Meet friends who share your health interests. Control what you share with extensive privacy settings.

This is a support group for people living with FAP. This will be a place for yourself or family and friends. As of February, this open Facebook group boasts nearly 100 members.

This is an open forum to discuss issues relating to IBD, surgery or life, and to post interesting topics or websites related. As of March, this closed Facebook group boasts over 350 members.

A support forum, sponsored by LSI, for those affected by Lynch Syndrome. As of March, this open Facebook group boasts over 3500 members.

People interested in the genetic mutation that causes non-polyp colon cancer and a variety of other digestive and skin cancers can ramble, rant and rave in secret! This closed group boasts over 200 members.

MySupport360 Hereditary Cancer

MySupport360 is dedicated to promoting awareness, sharing educational content & providing support for hereditary cancer. 

A support forum, for those affected by Lynch Syndrome in the UK. This closed Facebook group boasts over 100 members.

Here you can locate the United Ostomy Associations of America support group closest to you.

This group is for anyone that has had their large intestines removed and is still going strong! This open Facebook group boasts nearly 2000 members.

A open support forum, for those in the UK affected by Proteus Syndrome. As of March, this open Facebook group boasts over 100 members.

The Peutz-Jeghers Syndrome Community is an online discussion forum where members dealing with PJS, Juvenile Polyposis Syndrome and FAP share advice with other patients and caregivers. 

A French support forum, for those affected by Bannayan-Riley-Ruvalcaba Syndrome. This closed group boasts over 100 members.

A closed support group, for those in the UK affected by Proteus Syndrome. This open Facebook group boasts over100 members.

Growing up knowing about FAP is not easy! You are not alone out there! This is a support group for young adults and kids with FAP in their family, either someone close to you or yourself has it, we are here to help you! This is an open Facebook group.

Treatment Diaries is a social network with complete privacy for those living with illness, newly diagnosed or caring for someone with a medical condition.

This is a support group for young adults and kids with Cowden's Syndrome. This is an open Facebook group.