Below you will find support organizations, patient forums, and Facebook pages created by individuals who have been affected by hereditary colon cancer syndromes. We encourage you to read and respond to them. Share your experience. Ask questions. Inspire others...this is your community.
Peer Support... get by with a little help from your Friends!
This open Facebook group for those with barnett continent intestinal reservoir boasts over 100 members.
A U.K. bowel cancer forum for patients and family members. As of March, this forum boasts almost 20,000 posts in over 1300 topics from over 1500 members.
Think of us as an online space where you can connect, share news, and receive support. It’s your very own health social network, coming together on your personalized website.
COLONTOWN is an online community of more than 50 “secret” groups on Facebook for colorectal patients, survivors, and caregivers.
A support forum, for those affected by Cowden Syndrome. This open Facebook group boasts nearly 100 members.
An open discussion group with over 800 members.
A support forum, for those affected by Gardner Syndrome. As of March, this open Facebook group boasts over 100 members.
Imerman Angels carefully matches and individually pairs a person touched by cancer (a cancer fighter or survivor) with someone who has fought and survived the same type of cancer (a Mentor Angel).
This closed Facebook group boasts over 800 members.
Join others who have written 4,753,658 posts about the health issues that are important to them. Sign up for groups about health topics important to you. Meet friends who share your health interests. Control what you share with extensive privacy settings.
This is a support group for people living with FAP. This will be a place for yourself or family and friends. As of February, this open Facebook group boasts nearly 100 members.
This is an open forum to discuss issues relating to IBD, surgery or life, and to post interesting topics or websites related. As of March, this closed Facebook group boasts over 350 members.
People interested in the genetic mutation that causes non-polyp colon cancer and a variety of other digestive and skin cancers can ramble, rant and rave in secret! This closed group boasts over 200 members.
A support forum, for those affected by Lynch Syndrome in the UK. This closed Facebook group boasts over 100 members.
This group is for anyone that has had their large intestines removed and is still going strong! This open Facebook group boasts nearly 2000 members.
The Peutz-Jeghers Syndrome Community is an online discussion forum where members dealing with PJS, Juvenile Polyposis Syndrome and FAP share advice with other patients and caregivers.
Treatment Diaries is a social network with complete privacy for those living with illness, newly diagnosed or caring for someone with a medical condition.