[I was tested at the age of] 33. If I knew someone who had a family member with the disease, I'd say get it done yesterday! - Brian Hanson
I was tested at 4 years old when my dad found out he had FAP. I would recommend as soon as you can. I would recommend infants and even in uterus if doing an amnio already. The sooner you know the better off your child is. - Kari
I was tested when I was in 4th grade, so a little younger than 10. Though it was extremely hard for me to understand and cope with at the time, I would recommend that age. - Anonymous
I was tested after I was diagnosed. I was 22 [years old]. At that point it was too late to prevent the cancer. - Emily Wilson
[I was tested at the age of] 28-30. Yes, I [felt] it was appropriate for me. Maybe early 20’s would be better to aid in child planning. - Kelly Livingston
[I was tested at the age of] 40. It depends on the syndrome but, for Lynch, I recommend 18. - Georgia Hurst
[I was tested at the age of] 42. I wish the testing was around when I was younger. - Teresa Weimer
[I was tested at the age of] 33 when I was first discovered to have multiple polyps. I would recommend earlier if there is a family history. Better to know risks up front. - Brooke Porretti
[I was tested at the age of] 54. I wish I'd known many years earlier. - Samuel Duckworth
[I was tested at the age of] 31. I would recommend earlier if you think it runs in your family. - Allison Brewer
I was tested at 7 years old. I would recommend sooner if possible. - Julie Scott
I was tested at the age of 30. I would recommend testing at an earlier age. - Brenda Harbin
[I was tested at the age of] 25. As far as what age, I think it should be done early, perhaps as a teen or before. - Anonymous
[I was] 7-8 years old [when I was tested]. I recommend as early as possible. - Jenny Jones Bay
[I was] 20 years old [when I was tested]. I don’t see any age being a real issue. - Tiffany Probus
I think I was 20. I already knew I had the disease, so it wasn't really surprising to me. I think it could be beneficial for kids to be tested so that they can start getting screened for other medical conditions that can be associated with the syndrome. - Alyssa Zeigler
I was tested at 9 or 10. We went as a family, with a group of cousins. It made it fun to all be tested together. Being tested young opened up opportunities to be involved in research, which was really cool! - Morgan
I was tested at age 38. I would recommend being tested earlier. I have recommended my children to be tested in their mid 20’s.
[I was tested at the age of] 26. If you have it, have your child tested by 10 that way doctors can monitor your child. - Whitley Buckles
[I was tested at the age of] 40. Earlier if possible, but it wasn't in the insurance cards before. - Kathryn Howard
I was 16, but I'm the first with FAP in my family. - Maria Teresa Castellini
Question 9: What age were you tested? Would you recommend that age?
Factoid: Andrea Patenaude, PhD, Cancer Genetics and Prevention Program Psychologist at Dana Farber Cancer Institute provides great tips for talking to your children about genetic test results.
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