Patient Wisdom

Patient Wisdom

Question 2: How have you overcome what was originally a challenge?

 

Factoid: Some people face their challenges head on by writing blogs. Others participate in on-line support groups. Let us know if we’re missing one!

The two surgeries in 1984 knocked the wind out of my sails for a time. It was a year later that I regained my strength…and took on sports like softball, racquetball, golf, and regular activities again. The greatest challenge initially was working around the stool frequency, but with time it gets easier! - Ed Minor

 

I have had several major surgeries related to cancer or pre-cancer. Those surgeries include a bi-lateral mastectomy with reconstruction, a hysterectomy, and a total colectomy. Despite this, I remain active with hiking, running, weight training, and mountain biking. - Brenda Harbin

 

I had to learn to "let it go" as far as the stress and the fact that I couldn't change the diagnosis. This has been a daily struggle...especially with anxiety. - Lara Breunig

 

[I remained] conscious of my diet to avoid the most uncomfortable foods for my digestive system, stocked my frequently-visited bathroom with Time and Rolling Stone magazines, always request an aisle seat on airplanes for easiest lavatory access, and, mainly, recognized that J-Pouch living and follow-up surveillance is not debilitating, but quite manageable. - Frank Rider

 

I refuse to surrender! Never quit, never lose hope, never give in. Challenges are just opportunities to succeed in the face of sometimes a terrible situation. - Charlie Henricks

 

Every day I could wake up with cancer. So just doing stuff and moving forward is overcoming things. - Nathan Anderson

 

It took me about 8 years, but living with the anxieties related to my diagnosis was difficult. After I started writing about my experiences, I found meaning within them. - Alyssa Zeigler

 

I still struggle all the time with this disease and honestly don't think I will ever totally overcome it as it's so multi-faceted. In those moments, I remind myself of what I've done so far since my diagnosis and that, before meeting each of those challenges, there was substantial doubt and apprehension as well. - Dakota

 

Through a constellation of factors: therapy, meds, meditation, exercise, eating well, and surrounding myself with positive people and things. - Georgia Hurst

 

The biggest challenge for me has been that I have four sons, three of which have inherited the Lynch gene. Two have had extensive surgeries. Watching them learning to live with the results has enabled me to overcome my challenges for their well being. - Malcolm Strutt

 

Determination and desire to push myself…not wanting to quit fighting and not letting FAP or Gardner’s Syndrome dictate what I can and cannot do. - Israel Gonzales Jr.

 

Attempting to learn from what didn't work the first time. Anything from what food didn't agree with me to doing things different for a prep. - Tami Arnold

 

Kept a big grin on my face even through the pain. Always smile and on the day's where you feel it's not possible. Remembering where I was a few weeks, months, or even days ago gave me the lift needed to keep going. - Claire

 

I write a lot. I write about how I'm feeling physically and emotionally. It helps me to know where I am with all of this, what can be fixed, and what can't be changed. It's cathartic. - Emily Wilson

 

I defied the worst issue my grandmother had with adhesions by trying the body wrap that was on trial use and it worked, 100%.  My surgeon is on the cutting edge as no one else had heard of it and I have since highly recommended it to plenty of pancreatic cancer patients. Sandra Redlands

 

I have to put my faith into God and have faith in him. I would not have made it through 26 years of fighting. I pray all the time. But you can't give up and have to keep fighting even when things seem hopeless. I have seen miracles. You have to stay positive and just keep looking for answers. Hold tight to the people you care about the most. Anonymous

 

After my surgeries I had to come to grips with my new normal, mentally and physically. My body adjusted and now I can tolerate things I could not at first.  Eventually I came to a place where I no longer really remember being different. Tammy

 

Changing my ileostomy bag is easier now, less panic attacks when changing the bag. Whitley Buckles

 

Not giving in to my FAP and being "the complications queen”. Just plowing through and keep on breathing, even when I might like to give up. Kathryn Howard

 

By focusing on my kids and my grandkids and by embracing the mindset that this diagnosis was a blessing. We found out about it before anyone developed cancer. There are so many folks worse off than any of us and we have been fortunate to meet some amazing people along our journey. Suzanne Pilon

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