© 2017 Hereditary Colon Cancer Foundation

 

www.HereditaryColonCancerFoundation.org and www.HCCTakesGuts.org are informational and support websites for those affected by hereditary colon cancer syndromes. The website does not provide medical advice, recommend or endorse health care products or services, or control the information found on external websites.

 

Hereditary Colon Cancer Foundation and the Familial Adenomatous Polyposis Foundation are registered charitable organizations in Illinois and Utah, and tax-exempt under Internal Revenue Code Section 501(c)(3). Mailing address: 3519 NE 15th Avenue, Unit 518, Portland, OR 97212  |  info@HCCTakesGuts.org

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Hereditary Colon Cancer Takes Guts

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Attenuated FAP, Cowden Syndrome, Familial Adenomatous Polyposis, Gardner Syndrome, 

Hereditary Mixed Polyposis, Juvenile Polyposis Syndrome, Lynch Syndrome, Muir-Torre Syndrome, MYH-Associated Polyposis, Peutz-Jeghers Syndrome, Turcot Syndrome

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    Announcing the Hereditary Colon Cancer Foundation

    To our friends in the hereditary colon cancer community,

     

    When Shawnie and I founded the Familial Adenomatous Polyposis

    Foundation two years ago, it was easy to see how underserved the 

    FAP community was. There was a clear need for someone to work on

    behalf of these strong cancer survivors and previvors. And we answered

    the call to the best of our abilities.

     

    While our mission has not changed, our knowledge and understanding of this community has steadily evolved. We have learned a great deal from patients, caregivers and medical professionals about the entire hereditary colon cancer syndromes (HCCS) community. The similarities in the challenges we all face tell us our work could serve more than those with FAP. Moving forward, we seek to supplement and support the ongoing efforts of our fellow patient advocacy organizations. Our united voices can be greater than the sum of our individual parts.

     

    Effective today, April 1, we will begin operating under our new name - the Hereditary Colon Cancer Foundation. (No April Fool's joke here!)

     

    We will work symbiotically with HCCS organizations by raising awareness of their work and acting as a conduit for patients to access their services. In return, we hope to draw from their experiences as we develop patient-friendly resources that can successfully empower patients to be strong advocates of their own health care. We will also collaborate to organize patient meet-ups. Further, the medical professionals who treat HCCS do not isolate and specialize in treating one particular HCCS - they treat them all. So we will continue to host webinars to improve the quality of medical care.

     

    Our vision is to be a beacon of light - extending life expectancy, enhancing life quality, and instilling hope in those born with hereditary colon cancer syndromes. Thank you for supporting this endeavor.

     

    Sincerely, Travis H. Bray, PhD

    & the Directors of the Hereditary Colon Cancer Foundation

     

     

     

    Attenuated FAP

    Constitutional Mismatch Repair Deficiency

    Cowden Syndrome

    Familial Adenomatous Polyposis

    Gardner Syndrome

    Hereditary Mixed Polyposis Syndrome

    Juvenile Polyposis Syndrome Lynch Syndrome

    Muir-Torre Syndrome

    MYH-Associated Polyposis

    Peutz-Jeghers Syndrome

    Serrated Polyposis Syndrome

    The Hereditary Colon Cancer

    Community Includes: 

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    Our Amazing Support Team

    Tory Aldridge, patient advocate

    Danielle Brannan, patient advocate and founder of Capes for Grayson

    Randall Burt, M.D. Huntsman Cancer Institute

    Tiffany Costello, caregiver and patient advocate

    Jennifer Cross Johnson, patient advocate

    Kasey Duffens, R.N., and patient advocate

    Steven Erdman, M.D., Nationwide Children's Hospital

    Dakota Fisher-Vance, patient advocate and founder FAPulous TV

    Heather Hampel, C.G.C., M.S., Ohio State University

    Georgia Hurst, patient advocate and founder IHaveLynchSyndrome.com

    Kory Jasperson, C.G.C., M.S., Huntsman Cancer Institute

    Sara C. Knapke, C.G.C., M.S., National Society of Genetic Counselors

    Brandie Leach, L.G.C., M.S., Cleveland Clinic

    Anna Leininger, C.G.C., M.S., Minnesota Oncology Hematology PA

    Kate Mraz, L.G.C., M.S., Sutter Pacific Medical Foundation

    Deborah Neklason, Ph.D., Huntsman Cancer Institute

    Andrea Paal, C.G.C., M.S., WellStar Genetic Risk Assessment

    Susan Peterson, PhD, MPH, MD Anderson

    Sara Pirzadeh-Miller, C.G.C., M.S., National Society of Genetic Counselors

    Brooke Porretti, patient advocate

    Frank Rider, patient advocate

    Jewel Samadder, M.D., M.Sc., Huntsman Cancer Institute

    Leanne Stinson, patient advocate

    Michelle Sutter, patient advocate

    Alyssa Zeigler, patient advocate and author “Learning to Live by Defying the Odds”