Registries Hosted by Expert Care Facilities


​The following expert care facilities have organized a patient registry and are committed to providing quality health care to the hereditary colon cancer community. We are continually updating this list; Click here with additions.




Stanford Medicine - Stanford Gastrointestinal (GI) Cancer Program





Lahey Hospital and Medical Center - Hereditary Colon and Rectal Cancer Registry





The Sidney Kimmel Comprehensive Cancer Center at the Johns Hopkins Hospital - Hereditary Colorectal Cancer Registry





Washington University School of Medicine in St. Louis - Inherited Colorectal Cancer and Familial Polyposis (ICCFP) Registry





Hereditary Cancer Center at the Creighton University School of Medicine - Hereditary Cancer Center Registry (Emphasis on Lynch Syndrome)



New York


Memorial Sloan-Kettering Cancer Center - Hereditary Colorectal Cancer Family Registry





The Sanford R. Weiss, MD Center for Hereditary Colorectal Neoplasia at the Cleveland Clinic - David G. Jagelman Inherited Colorectal Cancer Registries





High Risk Cancer Reserarch Clinic at the Huntsman Cancer Institute at the University of Utah - The Hereditary Gastrointestinal Cancer Registry 



Canada - Ontario


Zane Cohen Centre at Mount Sinai Hospital - The Familial Gastrointestinal Cancer Registry (FGICR)