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Hereditary colon cancer syndrome survivors

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Hereditary Colon Cancer Resources

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Hereditary Colon Cancer Patient Portal

The Hereditary Colon Cancer Foundation is a nonprofit organization serving the hereditary colorectal cancer community. Our vision is to be a beacon of light - extending life expectancy, enhancing life quality, and instilling hope in those diagnosed with adenomatous polyposis, hamartomatous polyposis, or non-polyposis syndromes including: Familial Adenomatous Polyposis (FAP), Gardner Syndrome, Turcot Syndrome, Attenuated Familial Adenomatous Polyposis (AFAP), MYH-Associated Polyposis Syndrome (MAP), Juvenile Polyposis Syndrome (JPS), Cowden's Syndrome, Bannayan-Riley-Ruvalcaba Syndrome (BRRS), Proteus Syndrome, Hereditary Non-Polyposis Colorectal Cancer (HNPCC), and Lynch Syndrome.


Being diagnosed with a genetic condition is unlike any other singular diagnosis. Patients often struggle to find care and information that is inclusive of all their needs. Standards of care exist for doctors when consulting with patients who are combatting common forms of disease expression, such as tumors, osteomas, and polyps. However, in between the major symptoms and prognoses lies a nebulous space, full of uncertainty. The HCC Foundation strives to support patients by connecting them to educational and social resources so they, along with their loved ones, can be empowered to manage their quality of life. We welcome your suggestions and questions via email at Thank you.