© 2017 Hereditary Colon Cancer Foundation

 

www.HereditaryColonCancerFoundation.org and www.HCCTakesGuts.org are informational and support websites for those affected by hereditary colon cancer syndromes. The website does not provide medical advice, recommend or endorse health care products or services, or control the information found on external websites.

 

Hereditary Colon Cancer Foundation and the Familial Adenomatous Polyposis Foundation are registered charitable organizations in Illinois and Utah, and tax-exempt under Internal Revenue Code Section 501(c)(3). Mailing address: 3519 NE 15th Avenue, Unit 518, Portland, OR 97212  |  info@HCCTakesGuts.org

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Hereditary Colon Cancer Takes Guts

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Attenuated FAP, Cowden Syndrome, Familial Adenomatous Polyposis, Gardner Syndrome, 

Hereditary Mixed Polyposis, Juvenile Polyposis Syndrome, Lynch Syndrome, Muir-Torre Syndrome, MYH-Associated Polyposis, Peutz-Jeghers Syndrome, Turcot Syndrome

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    Inspire and Be Inspired

    Read the powerful words of other survivors, join a peer support group, and participate in blogs and vlogs.

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    Hereditary colon cancer syndrome survivors

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    Browse continually updated articles, financial resources, international support organizations, and care units.

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    Learn how to contribute and partner with us to build a new portal for patients and caregivers.

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    Hereditary Colon Cancer Patient Portal

    The Hereditary Colon Cancer Foundation is a nonprofit organization serving the hereditary colorectal cancer community. Our vision is to be a beacon of light - extending life expectancy, enhancing life quality, and instilling hope in those diagnosed with adenomatous polyposis, hamartomatous polyposis, or non-polyposis syndromes including: Familial Adenomatous Polyposis (FAP), Gardner Syndrome, Turcot Syndrome, Attenuated Familial Adenomatous Polyposis (AFAP), MYH-Associated Polyposis Syndrome (MAP), Juvenile Polyposis Syndrome (JPS), Cowden's Syndrome, Bannayan-Riley-Ruvalcaba Syndrome (BRRS), Proteus Syndrome, Hereditary Non-Polyposis Colorectal Cancer (HNPCC), and Lynch Syndrome.

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    Being diagnosed with a genetic condition is unlike any other singular diagnosis. Patients often struggle to find care and information that is inclusive of all their needs. Standards of care exist for doctors when consulting with patients who are combatting common forms of disease expression, such as tumors, osteomas, and polyps. However, in between the major symptoms and prognoses lies a nebulous space, full of uncertainty. The HCC Foundation strives to support patients by connecting them to educational and social resources so they, along with their loved ones, can be empowered to manage their quality of life. We welcome your suggestions and questions via email at info@fapfoundation.org. Thank you.

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