2012-2013 Highlights
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HCCTakesGuts.org the first FAP web site created to provide patient-friendly resources, such as: expert care facilities, disease information, financial resources, support organizations, recent research highlights, and current relevant news. HCCTakesGuts.org also provides patient support through a patient wisdom collection, Stories of Hope, links to support groups, and inspirational patient bloggers.
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Released the first printed patient advocacy brochure for those diagnosed with FAP.
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Hosted a “Diagnosis and Management of FAP” webinar, presented by Drs. Randy Burt and Jewell Samadder of the Huntsman Cancer Institute, viewed by over 700 medical professionals.
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Attended the Collaborative Group of the Americas on Inherited Colorectal Cancer 2013 meeting as the only invited patient advocacy group. (We are also members of this organization.)
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Inspired over 300 patients to improve their health through our inaugural “It Takes Guts! 21 Day Challenge”.
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Through invitation...
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Travis Bray is participating as a patient advocate for the NCCN Colorectal Cancer Screening Panel.
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Travis Bray is participating as a patient advocate for the Specialized Program of Research Excellence in GI Cancers, lead by Eugene W. Gerner, Ph.D., at the University of Arizona.
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We are an official partner of the Lynch Syndrome Screening Network.
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Supporting Partner of the Global Genes Project.
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Have had the pleasure of collaborating with:
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Tory Aldridge, patient advocate
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Nicole Boice, Global Genes Project
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Danielle Brannan, patient advocate and founder of Capes for Grayson
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Linda Bruzzone, Lynch Syndrome International
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Randall Burt, M.D. Huntsman Cancer Institute
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Nancy Butterfield, Colon Cancer Alliance
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Tiffany Costello, caregiver and patient advocate
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Jennifer Cross Johnson, patient advocate
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Dave Dubin, patient advocate and founder AliveAndKickn.org
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Kasey Duffens, patient advocate and nurse
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Carolyn Dumond, Myriad Genetics
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Steven Erdman, M.D., Nationwide Children's Hospital
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Carin Espenschied, C.G.C., M.S., Ambry Genetics
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Dakota Fisher-Vance, patient advocate and founder FAPulous TV
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Eugene W. Gerner, PhD, Cancer Prevention Pharmaceuticals
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Heather Hampel, C.G.C., M.S., Ohio State University
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Erika Hanson Brown, patient advocate and founder Colontown
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Georgia Hurst, patient advocate and founder IHaveLynchSyndrome.com
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Kory Jasperson, C.G.C., M.S., Huntsman Cancer Institute
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Sara C. Knapke, C.G.C., M.S., National Society of Genetic Counselors
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Brandie Leach, L.G.C., M.S., Cleveland Clinic
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Anna Leininger, C.G.C., M.S., Minnesota Oncology Hematology PA
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Jeannie Moore, Colon Cancer Alliance
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Kate Mraz, L.G.C., M.S., Sutter Pacific Medical Foundation
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Deborah Neklason, Ph.D., Huntsman Cancer Institute
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Sharon Perlman, Colon Cancer Alliance for Research and Education for Lynch Syndrome
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Susan Peterson, PhD, MPH, MD Anderson
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Sara Pirzadeh-Miller, C.G.C., M.S., National Society of Genetic Counselors
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Brooke Porretti, patient advocate
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Frank Rider, patient advocate
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David Rudzin, United Ostomy Associations of America
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Jewel Samadder, M.D., M.Sc., Huntsman Cancer Institute
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Michael Sapienza, Chris4Life Colon Cancer Foundation
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Robert Selliah, PhD, American MedChem Nonprofit Corp
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Nicole Sheehan, Colon Cancer AllianceLeanne Stinson, patient advocate
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Michelle Sutter, patient advocate
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Amber Trivedi, C.G.C., M.S., Informed DNA
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Paul Wise, M.D., Collaborative Group of the American on Inherited Colorectal Cancer
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Alyssa Zeigler, patient advocate and author “Learning to Live by Defying the Odds”
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