Hereditary Colon Cancer Takes Guts

2012-2013 Highlights

• HCCTakesGuts.org the first FAP web site created to provide patient-friendly resources, such as: expert care facilities, disease information, financial resources, support organizations, recent research highlights, and current relevant news. HCCTakesGuts.org also provides patient support through a patient wisdom collection, Stories of Hope, links to support groups, and inspirational patient bloggers.

 

• Released the first printed patient advocacy brochure for those diagnosed with FAP.

 

• Hosted a “Diagnosis and Management of FAP” webinar, presented by Drs. Randy Burt and Jewell Samadder of the Huntsman Cancer Institute, viewed by over 700 medical professionals.

 

• Attended the Collaborative Group of the Americas on Inherited Colorectal Cancer 2013 meeting as the only invited patient advocacy group. (We are also members of this organization.)

 

• Inspired over 300 patients to improve their health through our inaugural “It Takes Guts! 21 Day Challenge”.

 

• Through invitation... 

  • Travis Bray is participating as a patient advocate for the NCCN Colorectal Cancer Screening Panel.

  • Travis Bray is participating as a patient advocate for the Specialized Program of Research Excellence in GI Cancers, lead by Eugene W. Gerner, Ph.D., at the University of Arizona.

  • We are an official partner of the Lynch Syndrome Screening Network.

 

• Supporting Partner of the Global Genes Project.

 

• Have had the pleasure of collaborating with:

  • Tory Aldridge, patient advocate

  • Nicole Boice, Global Genes Project

  • Danielle Brannan, patient advocate and founder of Capes for Grayson

  • Linda Bruzzone, Lynch Syndrome International

  • Randall Burt, M.D. Huntsman Cancer Institute

  • Nancy Butterfield, Colon Cancer Alliance

  • Tiffany Costello, caregiver and patient advocate

  • Jennifer Cross Johnson, patient advocate

  • Dave Dubin, patient advocate and founder AliveAndKickn.org

  • Kasey Duffens, patient advocate and nurse

  • Carolyn Dumond, Myriad Genetics

  • Steven Erdman, M.D., Nationwide Children's Hospital

  • Carin Espenschied, C.G.C., M.S., Ambry Genetics

  • Dakota Fisher-Vance, patient advocate and founder FAPulous TV

  • Eugene W. Gerner, PhD, Cancer Prevention Pharmaceuticals

  • Heather Hampel, C.G.C., M.S., Ohio State University

  • Erika Hanson Brown, patient advocate and founder Colontown

  • Georgia Hurst, patient advocate and founder IHaveLynchSyndrome.com

  • Kory Jasperson, C.G.C., M.S., Huntsman Cancer Institute

  • Sara C. Knapke, C.G.C., M.S., National Society of Genetic Counselors

  • Brandie Leach, L.G.C., M.S., Cleveland Clinic

  • Anna Leininger, C.G.C., M.S., Minnesota Oncology Hematology PA

  • Jeannie Moore, Colon Cancer Alliance

  • Kate Mraz, L.G.C., M.S., Sutter Pacific Medical Foundation

  • Deborah Neklason, Ph.D., Huntsman Cancer Institute

  • Sharon Perlman, Colon Cancer Alliance for Research and Education for Lynch Syndrome

  • Susan Peterson, PhD, MPH, MD Anderson

  • Sara Pirzadeh-Miller, C.G.C., M.S., National Society of Genetic Counselors

  • Brooke Porretti, patient advocate

  • Frank Rider, patient advocate

  • David Rudzin, United Ostomy Associations of America

  • Jewel Samadder, M.D., M.Sc., Huntsman Cancer Institute

  • Michael Sapienza, Chris4Life Colon Cancer Foundation

  • Robert Selliah, PhD, American MedChem Nonprofit Corp

  • Nicole Sheehan, Colon Cancer AllianceLeanne Stinson, patient advocate

  • Michelle Sutter, patient advocate

  • Amber Trivedi, C.G.C., M.S., Informed DNA

  • Paul Wise, M.D., Collaborative Group of the American on Inherited Colorectal Cancer

  • Alyssa Zeigler, patient advocate and author “Learning to Live by Defying the Odds”